When five-year-old Griffin Dorn was diagnosed with juvenile dermatomyositis (JDM) in the spring of 2024, his family’s world suddenly changed. What started as unexplained weakness and fatigue quickly became a new daily reality of doctor visits, medications, and learning about a rare disease they had never heard of.
Griffin has faced every challenge with a spirit that inspires everyone around him. He’s curious and kind, obsessed with dinosaurs, and loves playing soccer — even on the days when treatment leaves him tired. This month, he’ll complete his 12th IVIG infusion and is currently on his second course of steroids. Through it all, his courage and humor have never wavered.
Watching her son’s resilience, Amy Dorn decided she wanted to do more than just manage the disease — she wanted to help find a cure. Last week, she launched her first Cure JM fundraiser, and in just a few days raised over $1,000 to support critical research and care programs for kids like Griffin.
“I decided to get involved because I wanted to make a difference for kids like my child,” Amy shared. “It’s been really rewarding to see how even small efforts make a big impact. It’s been a fun way to connect with friends and family, and I’ve been overwhelmed by their generosity.”
Amy’s passion reflects what so many Cure JM families discover: that hope grows when shared. Every donation helps accelerate research into better treatments and brings us closer to the day when no child has to face JDM.
Griffin’s story reminds us that courage doesn’t always roar — sometimes it looks like a little boy who refuses to stop playing, learning, and believing in a brighter tomorrow.
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