Nine NEW Ways Grandparents Can Support Their Family
Here are some ideas shared with us by JM grandparents on how how to best support their grandchild, siblings, and family.
Nine Ways Grandparents Can Support Their Family After Diagnosis
Here are some ideas shared with us by JM grandparents on how how to best support their grandchild, siblings, and family.
GCOM 2024 Round Up
Recently, Cure JM’s Jim Minow was able to attend the Global Conference for Myositis. This conference was not only informational, but was a most impressive day for Cure JM. The conference brings together leading myositis researchers from around the world to share results and collaborate on future projects leading to better care and improved treatments for our JM kids.
Jim’s 2023 Cure JM National Family Conference Recap, Washington, DC
Cure JM held its first post-COVID Family Conference earlier this summer. The conference was an extraordinary experience for families and leaders on so many levels, and I remain in awe of everything this organization has achieved because of the passion you bring to our mission.
Updates from Jim Minow
Updates from Jim Minow Jim Minow brings more than 30 years of nonprofit experience in executive management and fundraising to Cure JM Foundation. He served as the Chief Development Officer at the Foundation Fighting Blindness from 2005 to 2014, where he created and implemented programs that doubled annual revenues to $35 million. This funding has […]
Season of Gratitude
I am writing to wish you and your family the very best this Holiday Season. This time of year, especially, I am filled with deep appreciation for all that Cure JM families have accomplished to advance our mission, to improve the lives of children living with JM, and to support the doctors and researchers driving better treatments as we fight for a cure.
Affordable and Accessible Treatments for JM
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.
Partnerships in Developing New JM Treatments
In October, Cure JM had two speakers give an update about drug discovery in juvenile myositis.
Family Educational Events
Meet other Cure JM families at an upcoming educational event, family day, or conference in your area. Come together to learn the latest in JM information and meet others who share similar journeys and experiences.
My Mission, My Impact – The Carlson’s Ride Strong
We are continually moved by the creativity and unwavering passion that our families exude in their DIY fundraisers that make our mission possible. My Mission, My Impact, is dedicated to spotlighting some incredible events and fundraisers that breathe new life into our continued mission. The families featured have channeled their creative energy and talents to […]
Two Grandmothers’ Stories
Two Grandmother’s share their story and experience when their granddaughter Emma is diagnosed with JM.
Grandparent Council
The Cure JM National Leadership Council is a group of volunteers that actively fundraise for Cure JM.
Lemons To Lemonade For Kids
Our Story – Humble Beginnings Twenty years ago, Cure JM co-founders Tom and Shari Hume set up the Foundation’s first-ever DIY fundraiser to seed important new research funding. What was the fundraiser of choice? Considering the couple had young children, a lemonade stand was the perfect fit to launch a rare disease nonprofit during humble […]
“Ask the Doc” – Sun Protection Tricks & Tips for Summer 2023
With summer underway, we are honored to share our latest “Ask the Doc” Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children’s Hospital, share the importance of sun protection for JM patients.
Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know
Tips from JM Families for JM Families
Helpful tips from other JM families on topics like reducing anxiety during treatments, shots and blood draws, dentist visits, sun shades, journaling, and more!
Regional Events
There are Cure JM Chapters all across the United States offering support and opportunities to gather with other JM families in your area. Join an upcoming event near you!
About Us
The Cure JM Foundation is a global leader in juvenile myositis (JM) research, medical care, and family support. We are a family of families seeking a future when every child is free from JM.
Support
Cure JM offers a network of support, encouragement, and educational resources to help parents and patients navigate their journey with juvenile myositis.
Our Story
Cure JM was founded 19 years ago by a small group of volunteers who wanted to change the world for children with a rare disease few had ever heard of—juvenile myositis, or JM.
Randy: A Grandparent’s Story of Hope
Over ten years ago—in the spring of 2012—Brynn’s parents, Matt and Carrie, noticed a change in their daughter. Brynn had seemed like her normal four-year-old self while with her grandparents for Easter. But by May, something was different. “Our daughter, Carrie, and her husband Matt noticed that Brynn was not her active self,” says Randy, […]
Olivia’s Story
Olivia is four years old, and she’s been fighting juvenile myositis for almost two years. At the beginning of her treatment, Olivia’s parents, Leah and P.J., felt helpless in easing her pain. They wanted to help her however they could, so they channeled their efforts. “Raising money for Cure JM helped us focus our energy […]
Meet the Kania Family: Giving Tuesday Co-Chairs
Leah and PJ are parents to four-year-old daughter Olivia, who has been bravely fighting JM for almost two years. Together, they lead Cure JM’s annual Giving Tuesday Fundraiser. At the beginning of treatment, Leah and PJ felt helpless in easing Olivia’s pain—so they channeled their efforts into Cure JM.
Grandparent Council (GPC) Meeting Recap • May 25, 2023
Meeting notes are posted on the Grandparent Council Bookshelf. Next Meeting: Date June 22 2023 at 3 pm EDT/2 pm CDT/1 pm MDT/12 pm PDT The March Grandparents Council (GPC) meeting was held on May 25, 2023, at 3 pm EDT. These meeting notes will be posted in the Grandparent Council Bookshelf on google docs, along with previous […]