Cure JM September 2025 – Virtual Summit

Sept 2025 Summit Recap

Cure JM Virtual Summit on Juvenile Idiopathic Inflammatory Myopathies

September 25, 2025

In September, the Cure JM Clinical Care Network was pleased to invite juvenile dermatomyositis healthcare professionals to join us virtually for the latest presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best-practice clinical care in juvenile dermatomyositis. 

This event featured sessions on various topics, with the primary goal of enhancing the overall patient and provider experience through collaboration and sharing of best practices.

Intended Audience: 

  • Any clinician or researcher interested in IIM research or care
  • Pediatric and adult rheumatologists, dermatologists, and immunologists
  • Residents and fellows
  • Professors dermatomyositis, polymyositis, and related fields of study
  • HCPs who treat autoimmune conditions in adults or juveniles
  • Industry representatives

We are pleased to share each presentation and outcomes from each session below:

Welcome and Introductory Comments, Dr. Andrew Heaton, Cure JM CSO.


Updating the SHARE Guidance Publication on Treatment for JM Patients. Dr. Liza McCann, Consultant Pediatric Rheumatologist, Alder Hey Hospital, Liverpool, UK, Honorary Clinical Associate Professor, University of Liverpool, UK.


Transition: Navigating Pediatric to Adult Rheumatology Care. Dr. Rebecca Sadun, Associate Professor of Medicine, Associate Professor of Pediatrics, Duke University School of Medicine, USA. 


Expert Panel Discussion on Selected JM Cases feat. 

  • Dr Lisa Rider, Head and Senior Clinician, Environmental Autoimmunity Group, NIEHS, National Institutes of Health, Bethesda, MD, USA 
  • Dr. Stacey Tarvin, Associate Professor of Clinical Pediatrics, Indiana University School of Medicine, USA. 
  • Dr. Susan Kim, Prof of Pediatrics UCSF School of Medicine, USA 
  • Dr. Susan Shenoi, Prof of Pediatrics, University of Washington, USA 
  • Dr. Brian Feldman, Head of Division of Rheumatology, Hospital for SickKids, Toronto, Canada


Additional Clinician-Facing Resources  https://www.curejm.org/clinicians/

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Dr. Younghun Han: Shared DNA Clues Point to Faster Treatments for Juvenile Myositis.

Shared DNA Clues Point to Faster Treatments for Juvenile Myositis

In a study funded by the Cure JM Foundation and spearheaded by Dr. Younghun Han of the Baylor College of Medicine, scientists compared the DNA of more than three thousand people living with myositis to nearly twelve thousand healthy volunteers and found something striking. The major forms of myositis share much of the same genetic wiring.

Skin Disease, Victoria Werth

Skin Disease for Clinicians

Dr. Victoria Werth, M.D., discusses the identification and treatment of skin manifestations associated with dermatomyositis. Her talk covers diagnostic criteria, various skin manifestations, the latest treatment approaches, and the complexities of managing this condition, all aimed at improving patient outcomes and quality of life.

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