Medical Advisory Board
Lisa G. Rider, M.D.
Chairman, Cure JM Foundation Medical Advisory Board
Deputy Chief of the Environmental Autoimmunity Group, National Institute of Environmental Health Sciences, National Institutes of Health
Pediatric rheumatologist Dr. Lisa Rider is a consultant /attending physician and Clinical Professor of Medicine at The George Washington University Myositis Center, a Cure JM-funded endeavor. She has been researching JM for more than 17 years and has published 90 peer-reviewed papers. Dr. Rider has been a member of the steering committees for the clinical trial evaluating rituximab in myositis patients, as well as an international study to develop new classification criteria for myositis. Dr. Rider is a contributor and the lead pediatric investigator in the MYOGEN study to identify new genetic risk factors for adult and juvenile dermatomyositis. She co-chairs the International Myositis Assessment and Clinical Studies Group, which is conducting collaborative myositis clinical studies and developing standards for myositis clinical trials. Dr. Rider is the principal investigator of the Childhood Myositis Heterogeneity Study, a national registry that Cure JM has helped support. Dr. Rider also co-edited Myositis and You, a JM guidebook that Cure JM partially funded. Dr. Rider, a Captain, has recently been named Physician Researcher of the Year by the US Public Health Service, in recognition of her substantial basic and clinical research on myositis.
Lauren M. Pachman, MD
Professor of Pediatrics
Northwestern University Feinberg School of Medicine, considers it a privilege and an exciting challenge to provide longitudinal and individualized medical care for more than 20% of the Juvenile Myositis children in the United States. A University of Chicago Medical School graduate, Dr. Pachman received their Distinguished Service Award, the University Alumnae Professional Achievement Award as well as the national award for Clinical Research from the American College of Rheumatology, among others. The author of over 150 peer-reviewed full length scientific publications, Dr. Pachman directs her translational research team who are members of the Cure JM Program of Excellence in JM Research at Ann & Robert H. Lurie Children’s Hospital of Chicago. The “frequent flyer” clinic’s comprehensive and coordinated care is supported by a multidisciplinary team of nurses, physical therapists, social workers and pediatric rheumatologists. Dr. Pachman’s team is developing and standardizing new ways to monitor symptoms and signs of disease activity while they are engaged in NIH-sponsored advanced molecular studies of the myositis process.
Ann M. Reed, M.D.
Chair of the Department of Pediatrics, Duke University School of Medicine
Dr. Reed received the B.A. degree in biology/zoology from the University of Kentucky and the M.D. degree from Medical College of Ohio. She completed an internship and residency in pediatrics at Children’s Hospital Medical Center of Akron and a fellowship in clinical immunology/rheumatology at Children’s Memorial Hospital in Chicago. She further completed a fellowship in the Division of Immunology/Rheumatology in the Department of Pediatrics at Northwestern University Medical School and a research fellowship in a molecular genetics laboratory at the University of Chicago.
Her work has helped to identify genes that predispose children to Juvenile Dermatomyositis (JDM) and to give a comprehensive understanding of the genetics of the disease. Her work also involves early detection and diagnosis with personalized treatment for JDM including improved markers of disease activity and prediction of treatment response. She is involved in international multicenter clinical trials which are working to establish outcome measures for JDM disease activity and chronicity and look for new agents to treat the disease in both adults and children. Dr. Reed is principal investigator on several research grants funded by the National Institutes of Health and the National Institute of Arthritis and Musculoskeletal and Skin Diseases. Her findings have been published in peer-reviewed journals such as Journal of Immunology, Muscle Nerve, The Journal of Rheumatology, Arthritis Care & Research, Arthritis & Rheumatism, Rheumatology and Lancet.
Dr. Reed has received many honors and awards including recent election into the Kunkel Society and Arthritis Foundation Career awards as well as two RO1s. She is chair of the Juvenile Myositis Group for the Childhood Arthritis and Rheumatology Research Alliance and past chair of the American Board of Pediatrics sub-board for Rheumatology. She supervises and advises fellows and junior faculty in their clinical and translational research projects, teaching sessions and monthly journal club.
Adam Huber, M.D.
Pediatric Rheumatologist and Professor of Pediatrics at the IWK Health Centre and Dalhousie University in Halifax, Nova Scotia, Canada
Adam Huber is a Pediatric Rheumatologist and Professor of Pediatrics at the IWK Health Centre and Dalhousie University in Halifax, Nova Scotia. He completed his undergraduate medical training at the University of British Columbia, followed by pediatric residency at the University of Ottawa and pediatric rheumatology fellowship at the Hospital for Sick Children in Toronto. Under the mentorship of Brian Feldman, he became interested and involved in research in juvenile myositis. His current research interests include improving how children with myositis are evaluated and treated, and understanding outcomes of children with myositis.
Susan Kim, M.D., MMSc
Pediatric Rheumatologist and Assistant in Medicine at Boston Children's Hospital, Harvard University in Boston, MA
Dr. Susan Kim is a Pediatric Rheumatologist at Boston Children's Hospital, in Boston, MA. She completed her pediatric residency at Babies & Children's Hospital, at Columbia Presbyterian Hospital in New York, followed by pediatric rheumatology fellowship at Boston Children's Hospital and a Masters in Medical Sciences in Clinical Research from Harvard Medical School. She is interested in advancing the care of patients with Juvenile Myositis, using a multidisciplinary approach. She hopes to use clinical and translational research approaches with the goal of improving the diagnosis, treatment and outcomes of children with these rare pediatric inflammatory conditions.
Brian Feldman, M.D., MSc, FRCPC
Professor of Pediatrics & Medicine, Faculty of Medicine, and the DLSPH University of Toronto Head, Division of Rheumatology SickKids
Dr. Brian Feldman is Professor of Pediatrics, Medicine, Health Policy Management & Evaluation, and the Dalla Lana School of Public Health at the University of Toronto. He is Division Head of Rheumatology at The Hospital for Sick Children. Dr. Feldman graduated from the University of Western Ontario (MD, 1985) and he did further graduate training in clinical epidemiology at the University of Toronto (MSc, 1994). He interned at the Mount Sinai Hospital in Toronto and went on to do a core pediatric residency at the Children’s Hospital of Eastern Ontario. Dr. Feldman returned to Toronto to be an associate chief resident at The Hospital for Sick Children. He stayed on there to complete a fellowship in pediatric rheumatology.
Dr. Feldman’s main focus has been in clinical research in the field of childhood rheumatic disease. Recognizing the challenges involved in the study of rare disease Dr. Feldman has worked to improve the tools available to assist in this research. He has worked at developing and refining outcome measurement tools for use in clinical trials and in outcome studies. He has developed innovative methodologies for the study of new therapies (e.g. the Randomized Placebo Phase Design) and refined and tested powerful existing methods (e.g. Bayesian meta-analysis of n-of-1 randomized trials). Dr. Feldman has made contributions to the understanding of the prognosis and treatment of juvenile dermatomyositis, the cost-effective prevention of arthropathy in severe hemophilia, the course and outcome of systemic-onset juvenile idiopathic arthritis and juvenile SLE, and the role of fitness and exercise in childhood chronic diseases including arthritis and fibromyalgia.
Dr. Feldman’s research, by its nature, is collaborative. As such he is a member of the Pediatric Rheumatology Collaborative Study Group, the Canadian Alliance of Pediatric Rheumatology Investigators, the International Myositis Assessment Criteria study group, and other collaborative organizations. He is one of the founding members of the Childhood Arthritis and Rheumatology Research Alliance (CARRA), and was the head of its protocol evaluation subcommittee and chair of its Juvenile Dermatomyositis subcommittee.