Social Security and Supplemental Security Income Resources

As a parent of a JM child, you may be entitled to assistance to help cover your child’s medical bills.The Social Security and Supplemental Security Income disability programs are the two largest Federal programs assisting people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program.

Social Security Disability Insurance (SSD)

Social Security Disability Insurance (SSD) benefits you and certain family members provided you are “insured.” In this case, being “insured” means that you have worked long enough and in occupations where you paid Social Security taxes.

Supplemental Security Income

Supplemental Security Income (SSI) pays benefits based on financial need. The Social Security website has a wealth of information regarding these programs.

When you apply for either program, medical and other information from you is collected and a decision is made about whether or not you or your family member meet Social Security’s definition of disability.  

The Benefits Eligibility Screening Tool can be used to help determine which programs may be able to pay you or your family member benefits.

For more information, please visit www.ssa.gov/disability/.

Traveling with JM

Planning a trip or vacation can be challenging, especially when you have a child with juvenile myositis. With spring break and summer break just around the corner, the pressure might be even greater. However, at Cure JM, we want to help ensure that you and your child can enjoy all the delights of a vacation with minimal stress.

A Grandparent Spotlight – Anita

Cure JM recently had the pleasure of interviewing a remarkable individual who hails from Canton, Ohio, and brings a wealth of experience and love to her family. With a vibrant history spanning over five decades of marriage, three daughters, and a rich tapestry of grandchildren and great-grandchildren, Anita Mottice’s journey is as inspiring as it is heartwarming. As a retired nurse and devoted wife, Anita shares her profound connection with her family, particularly her grandchild Sydney, who has been diagnosed with Juvenile Myositis (JM).

GCOM 2024 Round Up

Recently, Cure JM’s Jim Minow was able to attend the Global Conference for Myositis. This conference was not only informational, but was a most impressive day for Cure JM. The conference brings together leading myositis researchers from around the world to share results and collaborate on future projects leading to better care and improved treatments for our JM kids.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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