School Resources
Informing your child's school personnel about Junvenile Myositis is important. Parents have reported a variety of avenues they have taken in order to do this. Depending on your child's situation and your school district, the following information and/or links may be of assistance to you:
Communicating with Your Child's Educators
- Have child's rheumatologist draft a letter to the school detailing
your child's specific needs. A sample letter is provided here:
Sample letter for your child’s school (Word Document Format)
- Print copies of What is JM? for school personnel
- Request meetings with school personnel (principal, nurse, teacher) to go over letter, detail any specific special needs and answer questions.
- Consider a formal presentation for school personnel, using Emily’s Voice as a template. The Emily’s Voice program was designed to assist teachers and other school personnel in understanding and helping students with disabilities that receive accommodations in a 504 plan and are mainstreamed in the classroom.
Download the Emily’s Voice Training Booklet
Download the Emily’s Voice PowerPoint Presentation
504 and IEP Plan Information
State Resource Sheets for Disability Related Issues
http://www.nichcy.org/states.htm
Special Education & Rehabilitative Services Legislation (IDEA & The Rehabilitation Act)
http://www.ed.gov/policy/speced/leg/edpicks.jhtml?src=ln
Section 504 of the Rehabilitation Act of 1973
http://www2.ed.gov/about/offices/list/ocr/504faq.html
The Individual Family Service Plan (IFSP)
http://www.eric.ed.gov/PDFS/ED449634.pdf
IEP's versus 504 Plans
http://www.slc.sevier.org/iepv504.htm
Guide to the Individualized Education Program
http://www.ed.gov/parents/needs/speced/iepguide/index.html
