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Cure JM Foundation 2017 National Conference and Fundraiser

Schedule and Educational Sessions*

Friday, February 17th, 2017

Swipe left to see all breakout sessions.

8:00am - 6:00pm
8:00am - 8:00pm
  Room
9:00am -
10:00am
10:00am - 11:00am
10:00am - 11:45am
11:00am - Noon
Noon - 1:30pm
2:00pm - 3:45pm
4:00pm - 5:00pm
6:00pm - 9:00pm
8:30pm - 10:00pm

Registration in the Vistas Lobby

Participate in a Research Project - Guadalupe Conference Room
Come to the Guadalupe conference room to learn more

Colorado 1
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Volunteer Leadership Training Sub-Committee Break-out: Chapters
Colorado 2
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Volunteer Leadership Training Sub-Committee Break-out: Walks
Colorado 3
Volunteer Leadership Training (NEW)
Volunteer Leadership Training Sub-Committee Break-out: Leadership Council & FSN
Trinity
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Rio Grande 1
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Rio Grande 2
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Kids Zone
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Comal
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Texas Connections Lunch in the Vistas Glass Ballroom

Lunch (Families will have lunch on their own)

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Young Adults
(18-30 years old)
Meet for Coffee:
Meet and walk to coffee shop
The Father Experience
Teen Perspective: Q&A Panel for Parents led by Teens (NEW)
Introduction to Mindfulness (NEW)
Siblings Matter (NEW)
Helping Your Kids Cope (NEW)
Yoga for Stress Reduction (NEW)
Coping for Caregivers 101
Patient Advocacy: Navigating School, Sports and Community
Ways to Manage Sun Exposure (NEW)
Mothers Supporting Mothers, Group A (Moms of Tweens, Teens and Young Adults)
The Power of the Extended Family Grandparents and Extended Family Members session
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Mothers Supporting Mothers, Group B (Moms of children - Infant to 10 years)
Keeping our JM family healthy: Nutrition, Exercise & Well Being for family members with JM
Building Your Child’s Self-Esteem
(NEW)
Teens & Young Adults: Support and Self-Advocating (JM Teens Only, 14+) (NEWLY MODIFIED)
All Teens Workshops - JM Teens and Siblings (Teens Only 14+), Photo, Art, Multimedia
Organizing for Local Chapters and Walks
(NEW)
Kids Room Activities
(3-13 years)
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Welcome Reception - Vistas Ballroom
This is a meet-and-greet social time where families will meet other Cure JM families in a casual social environment. Heavy appetizers will be provided.
Cure JM Young Adults Meet-Up - Lakeway Resort and Spa Billiards Room
For Young Adult patients, siblings and spouses; suggested age 18-30.
Social time and fun, including billiards, darts, and board games after the Cure JM Meet & Greet.

Saturday, February 18th, 2017

Swipe left to see all breakout sessions.

8:00am - 2:00pm
8:00am - 8:50am
8:00am - 8:00pm
9:00am -
12:15pm
12:15pm - 1:45pm
  Room
2:00pm - 3:30pm
4:00pm - 5:30pm
4:00pm - 4:45pm
5:30pm - 6:00pm
6:00pm - 7:00pm
7:00pm - 10:00pm

Registration in the Vistas Lobby

Leadership Council Meeting in the Brazos Conference Room
Leadership Council members only.

Participate in a Research Project - Guadalupe Conference Room
Come to the Guadalupe conference room to learn more

General Session - Rio Grande Ballroom
An elite group of JM experts will give an update on the latest research and answer audience questions.
Creating Connections Lunch - Vistas Ballroom
A complimentary buffet-style lunch will be provided while families enjoy social time to connect with other families. Attendees will have the option to sit with others from their city, state, or region if they choose. Please note that children and teens will enjoy lunch with their parents.
Colorado 1
Colorado 2
Colorado 3
Trinity
Vista 1
Vista 2
Kids Zone
Comal
Newly Diagnosed Families
How to talk to your doctor (NEW)
All Teens Workshops: JM Teens and Siblings (Teens Only 14+), Photo, Art, Multimedia
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Keeping our JM family healthy: Nutrition, Exercise & Well Being for family members with JM
Teen Perspective: Q&A Panel for Parents led by Teens (NEW)
Under-standing Labs and Treatments:
Ask the Doctors (NEW)
How to talk to your doctor (NEW)
Teen and Young Adult Transition Care
Under-standing Labs and Treatments:
Ask the Doctors (NEW)
Drug Trials: A summary of current drug trials underway
Kids Room Activities
(3-13 years)
Focus Group: Which Research Questions Matter Most to You (limited to 12 pre-enrolled individuals)
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Legacy Giving Opportunities: Tips for Assuring Your Estate is Directed by You
Fireside Chat, Lakeway Bar
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Austin Walk Committee Meeting
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Reception - Kids Room
During this social time, the Kids will present a song performance for the doctors and parents.
Awards Dinner - Rio Grande Ballroom
This family-friendly recognition dinner will celebrate the collective achievements of the JM community and Cure JM volunteers and fundraisers. A complimentary buffet-style dinner will be provided.

 

Sunday, February 19th, 2017

Austin Marathon, Half Marathon, 5k Runners: Runners meet in the lobby early, approximately 5:00am

Walk Strong to Cure JM: Walkers meet in the lobby, approximately 8:00am

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*Schedule subject to change.


Sponsored By


FedEx Idera Alderfer Bergen Retirement Planning Arthritis Foundation Austin Trust Company Borrow Lenses

Costigan Family Foundation

Drywall Interiors Dun and Bradstreet The Friedkin Group JMC Lurie Children's Hospital of Chicago Macworld Trade Group, Inc. Staples Upstream Investment Partners

Sheila and Harry Harvey

Bruce and Judy Leetz